My name is Xoxi, pronounced Zoshee. I am a researcher, educator and patient advocate working at the intersection of identity, disability and power and working on my Ph.D. at Lesley University. An additional personal mission and academic goal is to raise awareness about the nature of disability and pain, especially in specific instances where certain medical conditions are poorly understood and create extraordinary suffering to large numbers of people. In both these major inquiries, my drive is to make the world a better place. I believe that awareness leads to empathy, that empathy leads to action, and that action can result in social change. I strive to foster this change and promote social justice, and simultaneously, entertain. I am a professionally trained singer soprano, alumna of The Longy School of Music of Bard College where I completed a Masters degree in Music and Vocal Performance. I suffer from a painful neurological condition yet I do not let my mobility difficulties be an obstacle and I persevere.